The hitchhiker’s ride to the galaxy

Glendale in California was a great place to be from as suburbs of Los Angeles go, but I lived in a world entirely of my own making, only occasionally checking in on the banal happenings of an otherwise happy childhood.  I assiduously avoided anything that involved competition, such as throwing a ball, or catching one.  I sought shelter from the ordeal of growing up by exercising a vivid imagination.  My idea of fun?  An afternoon organizing the kitchen utensils, saucepans, and casserole dishes, or alphabetizing the spice rack.  Where did I find the time?  Usually between the tarragon and the turmeric.  I was fascinated by cars and the idea of driving; most of my childhood was spent imagining the kind of car I would drive when I got older, down to the last detail (like the sound the doors made when they closed), and pretending to steer, accelerate, and brake while sat in the back seat of my parents’ car en route.

With my mind’s eye I can recall an 18 year-old boy driving his 1978 Volkswagen Rabbit east on Santa Monica Boulevard in Hollywood toward Silverlake during the summer of 1984.  It is about 4 in the afternoon, the time of day when the setting sun squeezing through the Los Angeles smog makes the city feel dirty and orange.  It’s hot, so all my windows are rolled down and my sunroof is open.  My back is wet from sweating pressed up against the seat.  Corey Hart’s Sunglasses At Night is playing on the radio.  I usually drove home to Glendale by way of Hyperion Avenue in Silverlake, the way I was headed, because lots of gays lived there and I liked seeing if I could spot them on the street.  That summer, I began discovering and exploring a whole new world — you had to be let in by someone who knew and when you were you felt as if you belonged to something big, a thriving secret underground that had been waiting to welcome you.  There was an air of secrecy about it, and just a touch of naughty that made it feel oddly louche.  But the life I found there and made my own would be dramatically altered when I got ill from the big disease with the little name.  In a very real way, my midlife crisis was actually a crisis!

HIV/AIDS has left me unable to do many of the things you probably take for granted.  In a restaurant, you’ll find that I ask the waiter to have the chef cut my meat into bite-sized chunks since I cannot do that on my own and I do not like to impose on friends dining with me who have already been good enough to go to the extra effort an evening out with me takes, the only upside of which is use of my handicapped placard so they can get a spot right next to the restaurant’s entrance in which to park; I’d like to think it’s the chance to spend an evening dining with me, but let’s not kid ourselves, it’s the parking.

If you live in western culture, whether you are religious or not, it is extremely difficult to avoid falling into the trap of believing that things like health, happiness, or prosperity are rewards earned by the meritorious and virtuous; conversely, bad things are “deserved.”  People seem to want (or is it they need?) to believe that there is an inherent justice to be found in life, but there does not seem to be much evidence on hand for this kind of thinking.  Despite the indifference of circumstance, we still do our best to fashion duty, purpose, and meaning in its face.

I began blogging back in 2008.  The word blog is a portmanteau — a word blending the sounds and combining the meanings of two others, for example motel (from ‘motor’ and ‘hotel’) or brunch (from ‘breakfast’ and ‘lunch’); in the case of blog, it derives from the words ‘web’ and ‘log.’  It describes a log of my thoughts (moods, reminiscences) posted publicly on the World-Wide-Web.  On the Web, this form of instant and global self-publishing can really only be likened to the revolution in writing brought about by the 16th century essays of Montaigne.  His tendency to digress into anecdotes and personal reflections touching on a wide variety of subjects was seen as anathema to proper style and scholarship rather than as an innovation; his declaration that, "I am myself the matter of my book,” was seen as narcissistic self-indulgence at the time, yet one could argue led to today's personal blog as a form of self-expression.


I have heard people describe a chronic illness at midlife as having your life turned upside down; that was a shorthand I used for many years to make sense of my own life.  I have come to believe it’s more like a sock that’s been turned inside out.  Right way ‘round it looks fine, or at least what we expect a sock to look like, but the other way is much more complicated, even messy; the stitching is more obvious, the fabric less uniform, the color a bit off.  It lacks the fit and finish we expect.  It took many years but that’s what illness has revealed (and is still revealing) to me — the inside of the sock.  And its effects are just the other side of life.

My first car was that Volkswagen Rabbit I drove down Santa Monica Boulevard on a hot August afternoon, a world of triumphs and tragedies ahead of me.  My last was a Nissan Maxima I bought two days before I fell chronically ill; in between there was a Mustang, a Mazda, and even a Chrysler, none of which were ever parked in my make-believe garage.  For all that pretending to drive during childhood, I no longer do.  I never bought a car I thought I would, but then again I never imagined I’d be driving my words down an information superhighway — steering, accelerating, braking — finding my way en route.  That said, and all things being equal, actual mileage may vary.

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